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February 2006 MS Journal

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February 2006

February 2, 2006 - Once again, it seems that the treatment can add more insult than the original problem.  Yesterday was a tough day for me.  Mostly from the after-effects of the steroids.  I was extremely fatigued, was hard to concentrate,  my upper back and neck were sore from water-gain, my lower back spasmed when I would first lie down - basically I felt full of water weight and miserable from steroids.  When I feel this bad it's hard to  know if it was even worth taking the steroids in the first place.  My vote right this second is no, but I'm sure once I start dumping the extra fluids and start feeling more normal (and less like the stay-puff marshmallow man) I may reevaluate.

I'm not sure the replacement neurologist was incorrect in his initial assessment as to whether I needed to be put on steroids this bout.  I wasn't being objective about whether I needed the steroids (no surprise there). I took his opinion personally as though he was saying my MS wasn't bad enough or didn't matter.  And then I went out and got a second opinion.  Actually I ending up finding a doctor who gave me what I wanted despite the fact that it may not have been what I needed.  I guess I just wanted somebody to take my MS progress more seriously.  Looking at it from this point of view, I think I could've done without the steroids.   I still think my newest neurologist is a better fit personality wise with me, but I will definitely have to think twice (three times even) about taking steroids for an "annoyance" relapse again.

February 13, 2005 - I've been off Pepto Bismol for the "angry stomach" for 4 days now!  Yeah!  Still have 5# weight gain to get rid of - I attribute that to inactivity and eating more (and eating the wrong things) as it's been long enough that the water gain is gone.  My leg is 90% back to normal - tiny little patches are numb - plus when I get out of a too warm/hot shower the numbness returns lightly in that leg but fades as I cool down.  Fatigue is getting much more manageable and "normal" for me.  Back to my routine schedule :)

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