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January 2006
**IMPORTANT**
Beadopotamus will be closed from
December 6th - December 28th for the holidays.
Orders placed during this time will be processed December 29th.
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January 2006 |
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January 2006 January 1st, 2006 - Saw the replacement neurologist. He didn't feel that numbness alone warranted a stint of IV steroids or another MRI. At first I was offended that he didn't feel that my problems were "bad" enough. I'm sure he sees worse cases every day and in comparison, yes my course of MS isn't terribly bad, but to me - for someone who had a stretch of 6 years without an exacerbation - 2 in one year was a big deal to me. After I stopped to see it less personally I do tend to agree with his basic intent if not the delivery. Yesterday I felt that I was doing better than the night before. But today is definitely worse. The numbness in my left leg is making it difficult to walk downstairs as well as navigating uneven surfaces. My left arm and part of the left side of my face feel barely numb. Fatigue is beginning to set in and I have less energy during the day BUT despite this I don't notice any weakness or problems with my vision. Thank goodness for small favors :) On a lighter and unrelated note - today is a wonderful unseasonably warm day. Sat outside with my husband and indoor cat and enjoyed lunch while watching the birds and critters in the woods outside our house :) January 10th, 2006 - My left leg is still very numb - from foot to lower back. The bottom of my right foot went numb 3 days ago. I have an odd sensation in my left foot - feels like my sock is bunched up in my toes. I've checked numerous times and there's nothing caught - no string or hair or anything. Just a phantom type feeling or that I'm regaining feeling in my toes and it's confused. I had blood work done for my annual exam and I've got a low white count. Just barely out of the lower end of normal range. We will have to keep on eye on it and I'm trying to find out if that could be from the Copaxone. January 17th, 2006 - Definitely on the mend. My left leg is beginning to regain sensation particularly my thigh (first area that went numb). Bottom of my left foot is very numb still - but overall its starting to feel more normal. Still tired in the afternoons - back to my regular nap schedule instead of sleeping in until 10am, waking up for a few hours, then going back to bed. Now I get up around 7:30 - 8:00 am, nap from 2-4 and am up till 10-11pm. 'Bout like normal :) January 24th, 2006 - This morning I saw yet another neurologist. He got a full history and ran me through the neuro test battery. His approach is almost completely the opposite of the replacement neurologist's opinion. He believes that 2 relapses in 1 years means that, for me, my current therapy isn't towing the line. We didn't discuss it in depth this time, but it looks at though his first option is to add Avonex injections to the Copaxone. He also wants to get an MRI of my neck to check for lesions (he thinks that's where this most recent one is) and he's getting me on a 5 day course of IV steroids starting right after I get my MRI (the MRI will be done tomorrow evening). He ordered up some blood work (which was done today) and the home health care for the IV steroids is set to start Thursday. Silly thing about all of this is I was upset when the replacement neurologist didn't take my concerns about 2 relapses in 1 year as I did, but now that I'm seeing one who does - it upset me having a neurologist agree that things weren't going well. Denial is a lovely place to live and I keep retreating to it.... In any case, I'm trying to do more research on multiple drug therapies and try to realize that being proactive with MS is a good thing.
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